When you want time to pass faster, as when you wait for the results of the analyzes, it staggers! Or when you want it to stop for a moment, it just runs away. Time is not my most loyal ally.
For example, I just saw that it’s been more than three months since I last wrote. Although there were a lot of things I could tell you about, I did not have the time to write about.
Today, on the other hand, when I’m staying at home and waiting for my CT cd-s to be delivered to me from Rome, time feels like pudding …
On June the 9th, I’m going to have a new bronchoscopy based on this CT I’m waiting for, because in Rome they found that although most of my metastases are behaving well under the control of Ceritinib treatment, a new one, 25 mm different from the others, appeared on my lung.
As always, the bad news that my apparent path to healing was interrupted by a new metastasis has ruined me. For a day. Or at least that’s what I pretend.
When I found out that most patients like me died six months after diagnosis, I tried to accept that the healing is only a chimera and the only real thing I can hang on is life like a raft in the middle of the ocean that will never touch shore, a suspended survival in time of 3 years and 6 months, and counting.